Sept 15: A Year of Lost Identity, Part 1

joblossOne of life’s more turbulent waves that threatened to topple me (see In search of solid ground  for reference) happened a year ago today, Sept 15 2016.   As that wave washed over me, it stripped me of identity and self-worth.  I nearly lost my life in the attempt to stay afloat, and I still feel as if I haven’t recovered my breath.  Here’s what transpired, leading up to that unforgettable day:  Continue reading

My Story (so far)

What might seem odd, after having published 42 posts, is to be writing something entitled “My Story”.   Since I wasn’t clever enough to have made my last post The Answer To The Ultimate Question Of Life, The Universe, And Everything, I decided it was high time to write a short biographical, with all the interesting bits in one place.  You see, lately I’ve been joining various online groups — mostly MS-related — and I am finding the redundancy of “introducing” myself over and over again to be incredibly tedious.  The future plan?  Point ’em to this tell-all page.  Brilliant! So, with apologies to those who have already slogged through 42 posts, here goes … Continue reading

The 6-month Habit

Last night, as my fellow Americans enjoyed the Independence Day festivities, I achieved a personal milestone:  I took my 180th injection of Copaxone.  I’ve been on this treatment now for 6 months (due to my rough start, only about 5 1/2 of those 6 months have been continuous).  When I first started this journey, I would never have imagined that I would be able to write about this minor “victory” today!  Continue reading

Undemented Doubting

An entire month has somehow passed since my last post, and what a month it has been.  On the work front, I’ve mostly wanted to pull my hair out,  but there were some “I can’t believe I get paid to do this” moments as well, such as the day that I gave a technical brief to a veteran astronaut (who is my boss, three times removed).  On the non-work front, I’ve received some medical test results which have left me scratching my head.  Continue reading

“10 Signs That You Might Be Losing It: 1) You tend to forget things … 6) You tend to forget things…”

Well, Dave Barry, I’m not turning 50 (yet!), but I hear ya! In fact, a neuro-psychologist, no less, is in the process of determining if, and by how much, I am indeed “losing it”.  I took a cognitive examination a month or so ago, and the results are in… Continue reading

How many specialists does it take to …

… make a diagnosis?   (My title here was a weak attempt at humor, making a play on the “How many PhD’s does it take to change a lightbulb” joke.  Yeah, I know, don’t quit my day job to become a comedian just yet).

In the past 2 weeks, I will have or will soon be seeing no less than 4 specialists related to the field of neurology, in addition to my “primary” neurologist.  Continue reading

Data, diagnosis, and the Scientific Method

My previous emails have been an attempt to provide a 15-year background and quickly catch up to the present-day.  I’m almost there!  When I last posted, I was discussing my Copaxone treatment, and mentioned that one reason that I had fallen “off the wagon” for a couple of days was because of an unusually stressful week that got me home late each evening and really just too tired to deal with the hassle and pain.

Well, there was another reason for temporarily stepping off the wagon… Continue reading