Eye Am Stable?

Just a quick eye-health report. and its a good one.  I’ve had 2 OCT scans since I last reported on my eye condition.  I saw a new neuro-opthomologist back in the spring, at UCSF, and then back to my optometrist last month.  As usual, I give you a summary of all the OCT measurements so far:

Continue reading

Advertisements

Sometimes the MiSery is Not MS

Over the past year or so, I’ve joined several MS Facebook groups, mostly out of curiosity regarding what MS “looks like” in other folks, in hopes of getting some needed perspective.  In some cases, the collective advice and wisdom have been somewhat helpful. On the flip-side, I have also noticed an alarming tendency to attribute every ache and problem under the Sun to MS.  At one point, I was even advised by a member of one of these groups to “just blame everything on MS because it’s easier that way”.   Maybe, but the scientist in me ain’t buying it.  Even more importantly, sweeping everything under the “MS rug” has the potential for doing considerable harm. Take my hand, for instance…

Continue reading

A Second Opinion

Last week, following the wonderful mini-vacation and science conference that we enjoyed, I had a follow-up appointment with the MS specialist.  This follow-up comes on the heels of having seen an  neuro-opthomologist (which frankly was kind of a waste of time) and a neurosurgeon (the pineal cyst is not big enough to require surgery or be a source of concern), and following several blood tests (with tests for NMO and sticky-blood syndrome, along with the usual MS blood panel, all of which tested negative).

During this appointment, Dr. H. seemed to me to be a little off her game, or maybe I was expecting more from her than was fair.  Continue reading

How many specialists does it take to …

… make a diagnosis?   (My title here was a weak attempt at humor, making a play on the “How many PhD’s does it take to change a lightbulb” joke.  Yeah, I know, don’t quit my day job to become a comedian just yet).

In the past 2 weeks, I will have or will soon be seeing no less than 4 specialists related to the field of neurology, in addition to my “primary” neurologist.  Continue reading