My Story (so far)

What might seem odd, after having published 42 posts, is to be writing something entitled “My Story”.   Since I wasn’t clever enough to have made my last post The Answer To The Ultimate Question Of Life, The Universe, And Everything, I decided it was high time to write a short biographical, with all the interesting bits in one place.  You see, lately I’ve been joining various online groups — mostly MS-related — and I am finding the redundancy of “introducing” myself over and over again to be incredibly tedious.  The future plan?  Point ’em to this tell-all page.  Brilliant! So, with apologies to those who have already slogged through 42 posts, here goes … Continue reading

Sometimes the MiSery is Not MS

Over the past year or so, I’ve joined several MS Facebook groups, mostly out of curiosity regarding what MS “looks like” in other folks, in hopes of getting some needed perspective.  In some cases, the collective advice and wisdom have been somewhat helpful. On the flip-side, I have also noticed an alarming tendency to attribute every ache and problem under the Sun to MS.  At one point, I was even advised by a member of one of these groups to “just blame everything on MS because it’s easier that way”.   Maybe, but the scientist in me ain’t buying it.  Even more importantly, sweeping everything under the “MS rug” has the potential for doing considerable harm. Take my hand, for instance…

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Daily injections of fire

[NOTE: updated on Feb 21, 2013 — added a couple new injection suggestions near bottom of post].  I’m posting fast-and-furious  because my life is in super-fast motion right now, and I need to get y’all caught up to “today” rather than telling historical stories. Reading a blow-by-blow account of someone’s  life,  rather than a historical account of past events, allows the reader to be “in the moment” with the author, experiencing all the twists and turns, and makes for far more interesting reading!  My past posts have served to provide some medical history/background, but very soon (maybe after this post?) we’ll be all caught up and current with today.

Enough disclaimer, now back to the regularly scheduled program …

Multiple sclerosis, briefly, is an autoimmune disease in which the body attacks the myelin sheath that surrounds/protects the neural axons in the “white matter” part of the brain (the “white” actually comes from the myelin, which is a fatty tissue). Continue reading

How I got here, Part 2: Choose your charities carefully!

I love to cycle.  My love for bikes started when I was an undergraduate … one of my physics lab teaching assistants (TA)  had a beautiful, very expensive bike that he had won in a bike race.  That bike went everywhere with him, and was a permanent fixture during labs.  As I was hanging weights off of pulleys, and trying to figure out why the hell my circuits weren’t working, I’d sneak glances at that beautiful, sleek bike and wish it were mine.  My lab TA — the owner of said bike —  did semi-professional racing on weekends, and his body was a toned, lean-mean machine.  He made biking look very, very cool. Continue reading